Change approach to diagnosing autism to ease wait times, stress: B.C. doctor

Society says autism spectrum disorder affects one in 66 Canadians aged five to 17

Lindsay Roberts is home-schooling her son, not by choice but because the five-year-old boy would be prone to hitting people, screaming and suddenly running away if he became overstimulated in a classroom without any support.

“My little guy couldn’t start kindergarten because he can’t access support without a diagnosis,” said Roberts, whose son Colton is showing symptoms of autism, the same neurodevelopmental disorder that affects his eight-year-old brother, Travis.

So far, Colton has seen a pediatrician he was referred to by his family doctor but is still waiting to see another specialist who could assess and diagnose his condition.

“The wait list for the pediatrician is a year and then the wait list for the actual assessment with the psychiatrist is another year to 18 months,” said Roberts, who lives in Lake Country.

“The system doesn’t offer support until the child is suspended many times or expelled. Then we can apply for support but that’s really hard on a child’s self-esteem.”

Many parents choose to jump the public queue by getting a private assessment but that’s not possible for those who can’t afford the extra expense, Robertson said, adding funding for autistic children is not available until after a diagnosis and can’t be used to pay for assessments retroactively.

Dr. Lonnie Zwaigenbaum, chair of the Canadian Pediatric Society’s task force on autism spectrum disorders, said the increasing prevalence of the condition calls for general pediatricians and other primary health-care providers to be trained and supported to assess and diagnose it and provide follow-up care.

“There have been pockets of innovation in Canada, really demonstrating that it’s possible to support community pediatricians to do some of that assessment work,” he said, adding that is the case in parts of Ontario, B.C. and, to a lesser extent, in Alberta.

“This really needs to be part of the standard of care in Canada and to not do so contributes to disparities in access and also bottlenecks in the system and likely contributes to lengthy wait lists,” he said.

READ MORE: New study suggests autism overdiagnosed: Canadian expert

The involvement of a team of health-care providers who assess autism is not always necessary and impractical in some areas, Zwaigenbaum added.

The society has released recommendations for a more flexible diagnostic approach that would include general pediatricians, not just doctors and psychiatrists licensed to do so, using a range of resources including screening tools and a checklist for assessments involving conditions that could be associated with autism, such as dental, vision and hearing issues as well as sleep, anxiety and ADHD.

Functional challenges that could require physical, speech-language and educational supports are also considered, as well as questionnaires for parents and teachers, and determining whether families are getting help with any social assistance needs.

Zwaigenbaum said the approach would address concerns about lack of access in rural and remote regions where developmental pediatricians aren’t available when parents become concerned about developmental issues including lack of response when a child’s name is said, delay in language and limited eye contact.

“You may not even have a pediatrician in town so trying to come up with a more flexible diagnostic assessment system that can be applied across the diversity of settings in Canada, I think, was really an explicit goal of this task force,” he said.

Zwaigenbaum said all children should be monitored for early behavioural signs of autism spectrum disorder during doctors’ visits regarding their development.

The aim is to use the recommendations as a blueprint for autism care in medical school residency programs as well as continuing education courses, Zwaigenbaum said.

The society says autism spectrum disorder affects one in 66 Canadians aged five to 17, with boys diagnosed four times more often than girls.

Susan Watts, a family support representative for Autism Canada, said the society’s position on the role of general pediatricians would allow for earlier diagnosis, reducing stress among children and parents involving a condition that can affect their daily lives in profound ways.

Watts said a patchwork of diagnostic approaches exists across the country, with Quebec licensing only psychiatrists to diagnose autism while the requirements in other jurisdictions are not as strict.

That means children who moves from one province to another after being diagnosed may have to be rediagnosed and go through the waiting process all over again, she said.

Camille Bains, The Canadian Press

Like us on Facebook and follow us on Twitter.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Terrace dental clinic say no staff experiencing COVID-19 symptoms 22 days after dental conference

Five members of the office attended the Pacific Dental Conference from March 5-7

Better COVID-19 testing results needed in the north

Former senior Northern Health official also wants work camps shut down

Social media a blessing and a curse during time of crisis: B.C. communication expert

‘In moments of crisis, fear is very real and palpable,’ says SFU’s Peter Chow-White

City of Terrace calling on Province to take stricter social distancing measures

The City sent the Province a letter earlier this month with a number of recommendations

Northern Health preparing ‘for a changing situation’ in response to COVID-19

The health authority is taking a number of measures to free up hospital capacity where possible

No plans to call in military right now to enforce COVID-19 quarantine: Trudeau

Trudeau unveils $7.5M for Kids Help Phone, $9M for vulnerable seniors amid COVID-19

QUIZ: How much do you know about the Olympics?

Put your knowledge to the test with these 12 questions

B.C. announces $3M for food banks to increase capacity during COVID-19

It is not clear how much of the money will flow towards Greater Victoria food banks

B.C. is seeing the highest rate of COVID-19 recovery in Canada, and there’s a few reasons why

British Columbia was one of the first to see rise in COVID-19 cases, and has also switched up testing

World COVID-19 update: U.S. expects 100,000 deaths; Oregon declares disaster

Comprehensive update of world news for Sunday, March 19.

Sewers stitch masks to free up supplies for front-line health-care workers

“We have little old ladies sewing up a storm,” said Joan Davis

Experts weigh in on best handling of groceries during COVID-19 pandemic

Study suggests the virus can live for up to 24 hours on cardboard and up to three days on plastic

‘There is community’: B.C. councillor welcomes new baby into world amid COVID-19 pandemic

‘I realize there’s much more than fear and worry… there is hope, there is new life’: Jason Lum

‘Community is amazing’: Williams Lake woman organizes drive-by birthdays

With self-isolation the norm due to COVID-19 children are missing out

Most Read