Tristin Ozard, 21, receives an infusion of medication to treat Crohn’s disease. The medication, Remicade, costs his family about $8,000 a month but is the only one that works for him. (Photo courtesy of Melissa Ozard)

B.C. mom speaks out about paying $8,000/month for Crohn’s disease drug

Melissa Ozard has had to seek out help to pay for her son’s medication

A Saanich resident is speaking out about the cost of prescription drugs for her son after reading that many Canadians are borrowing money just to afford medication.

Melissa Ozard’s 21-year-old son, Tristin, has Crohn’s disease — a disease that causes inflammation of the digestive tract and can lead to severe symptoms that can require hospitalization.

Tristin was diagnosed with the disease when he was eight years old.

After trying several medications that did not work for him and being in and out of the hospital, he was able to settle for one called Remicade.

Remicade costs about $8,000 per dose. For Tristin, it has brought him into remission.

READ MORE: B.C. residents rally for medication

The medication — which is made from living cell organisms — must be taken intravenously and takes about four hours to infuse. Tristin needs a dose of the medication every four weeks.

“He’s failed on every other drug before that, nothing else has worked,” said Melissa. “It used to be a last line of defense drug and on top of that, he needs more of it than the average person for it to work.”

She noted her son used to go to a clinic in Vancouver to receive the medication at a pediatric facility. At the time, the cost of the drug was completely covered.

Now that he has aged out of the pediatric system, he receives treatment on the Island, but the cost is no longer covered.

Ozard said PharmaCare originally offered to pay for half of his doses, leaving the family with a bill of about $4,000 a month to keep him on it.

However, PharmaCare has retracted their offer and as of August, said nothing would be covered, according to Melissa.

“They said his dose is too high … because he requires it every four weeks they won’t cover it at all,” she noted. “They found a loophole.”

READ MORE: Health committee cheers idea of national Pharmacare program, but cost an issue

Melissa and her husband put every dollar they have into Tristin’s medication and have even asked family and friends for help through a GoFundMe page.

“The issue for us is every month going to family members and saying ‘can you help us?’” she said. “It’s humiliating and horrific and we’re putting them in a horrible position.”

But they do what they need to for their son, who is enrolled in college courses and would not be able to afford the medication on his own.

On top of his Crohn’s diagnosis, Melissa said Tristin deals with mental illness and is receiving disability support from the province.

There is an option to get some coverage through a patient assistance program but she said her son would have to surrender all of his medical records to a pharmaceutical company and receive his medication at a private site instead of a hospital.

Tristin sees many doctors due to his mental illness and because of that, is not comfortable giving his medical records out.

The private sites, Melissa said, have also been known to not keep the medication he takes at the appropriate temperature necessary.

READ MORE: Federal budget fosters Pharmacare, pot-based drugs

“It’s too high a price to pay for some people,” she said. “He doesn’t want to use them, it scares him.”

However, if he goes off the medication, he would be hospitalized within weeks.

Melissa’s not sure what the solution is, but that she hopes more people learn about the cost of prescription drugs and consider how it may affect other people.

“He wants to do something with his life … This is an important issue.”

shalu.mehta@goldstreamgazette.com


Like us on Facebook and follow us on Twitter

Just Posted

Cullen gets $89,000 in post-MP severance

Nathan Cullen, the outgoing New Democrat MP for Skeena-Bulkley Valley is leaving… Continue reading

UPDATE: Highway 51 reopens briefly

All-wheel drive vehicles are permitted from 10 a.m. to 4 p.m. Tuesday

Terrace RCMP investigating suspicious death of a man in Thornhill

Kamloops resident was found unresponsive early Sunday morning, died hours later

Freezing rain warning issued for central Interior Remembrance Day

Highway alerts in place for Begbie Summitt and Pine Pass

BCTF rejects mediator’s recommendations for settlement

Negotiations between B.C. teachers and the province will continue

Disney Plus gives Canadians a streaming platform that nearly matches U.S. version

The Walt Disney Company’s new subscription platform unveiled a comprehensive offering of nearly 500 films

Bill Murray dons iconic Hudson’s Bay scarf to watch Canucks game in Vancouver

Murray is in Vancouver to film The Now, a mini-series directed by Peter Farrelly

Canadian allergists’ group wants Benadryl behind the counter due to side effects

Some doctors say the medication is over-used because of its easy availability

B.C. government grappling with multiple labour disputes by public-sector unions

Public-sector unions may have expectations of a labour-friendly NDP government

‘We love you, Alex!’: Trebek gets choked up by ‘Jeopardy!’ contestant’s answer

The emotional moment came in Monday’s episode when Trebek read Dhruv Gaur’s final answer

Birthday boy: Pettersson nets 2 as Canucks beat Predators

Vancouver ends four-game winless skid with 5-3 victory over Nashville

Judge rejects Terrace man’s claim that someone else downloaded child porn on his phone

Marcus John Paquette argued that other people had used his phone, including his ex-wife

Petition for free hospital parking presented to MP Jody Wilson-Raybould

What started as a B.C. campaign became a national issue, organizer said

Petition to ‘bring back Don Cherry’ goes viral after immigrant poppy rant

Cherry was fired from his co-hosting role for the Coach’s Corner segment on Nov. 11.

Most Read